Cycle 4 - Day 6 and 7

We have had a lovely couple of days, partly thanks to the beautiful weather. It is so nice taking Niamh out for walks, especially as she will spend most of the spring in hospital. She really enjoys going to get Emilie from school.

Niamh is making good progress with her motor skills once again. A physio came yesterday to assess her physical abilities. She will be coming back tomorrow morning for a session. Niamh did a lot of crawling and climbing today; she particularly likes climbing up the stairs. Great exercise. She also did well with her walking and standing. For some reasons she doesn't like wearing her splints anymore. They seem to hurt her feet. Need to investigate ...

As far as chemo drugs are concerned, Niamh had her last dose of temozolide on Sunday night, she is now on oral etoposide only until Friday. Then Cyclophosphamide.

Niamh was sick three times yesterday and once today so far. I am now almost assessed to pass Ng tubes, I have done two, one more to go before I get signed off. Both of us being assessed will make life easier. We had been told that children are usually calmer when their parents pass the ng tube, and it is true. She does cry a little but it is a lot less traumatic than it used to be.