Niamh had a good night sleep but woke up at the very ridiculous time of 5.30am! It has been a long day. I think we were getting more sleep when the girls were newly born. Anyway.....
Niamh enjoyed her morning at home, lots of moving around, lots of playing and lots of giggling which is nice. She made me laugh when we were playing skittles and I dared to knock a couple. I quickly understood that I could only play if I did not knock the skittles down, only she could. I must say she is excellent at it. Obviously competitive like her sister (hmm wonder where they get that from!).
She had a quick nap around lunchtime, unfortunately woke up and vomited, ng tube out.
We got to the oncology clinic around 1.30pm, the nurses were quite quick at doing her blood test. An hour later we found out that her platelets had gone down to 39. The threshold is 50 so she had to have platelets. She also had a new Ng tube and her first gcsf injection. Then at 5pm, we got to leave the hospital. She was soooooo happy to leave.
She has had a lovely evening, very excited about being reunited with her sister. She spent most of the evening wanting to do the actions for the song 'J'ai perdu le do de ma clarinette' which Auntie Caitlin has been teaching her.
Her blood counts today are:
Haemoglobin - 8.8.
White Cells - 2.1.
Platelets - 39.
Neutrophils - 1.9.
The doctor is ordering more platelets for Friday as they only live for two days in the body. She may need a blood transfusion later in the week too.
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