Cycle 4 - Day 4

The neuro surgeons have adjusted Niamh's shunt to 0.5 instead of 1.5 and this seems to have helped reduce the size of the bump on her head.

Last night and this morning were really nice. Niamh had been moved into Bay 4 (The high roller suite) while Bay 3 is being spring cleaned. It was only us in a room big enough for 4 beds. There is a big screen TV and DVD player and several big purple armchairs. We bought pizza and chips (I was the closest shop) for dinner and all sat together to eat.

When Emilie, Caitlin and Helene had gone. Niamh and I just cuddled up on the chair and watched dvds till late. When I finally convinced her to get to bed, she was still keen to try a jigsaw until she dropped off to sleep about 11. She was really trying to talk even though I couldn't understand a word she was trying to say.

Niamh slept fantastically and in the morning we just pottered about our suite watching Tweenies, enjoying visitors and getting ready to go home.

In the afternoon we went home and unfortunately Niamh vomited the moment she sat on the sofa. Later she was OK, she enjoyed eating some prawn crackers which is a first since she was diagnosed. You definitely get the feeling she wants to get more involved with food when we are all eating.

It's great to be home again but we are a bit worried about the pressure in her head. I don't know whether we'll ever be free of this particular worry.