As expected Niamh's temperature rose in the night. She woke up at 3am, vomited, tube out. Her temperature was 38.8. We got to A and E around 4am. It was nice and quiet so we got seen very quickly. She is on the usual very strong antibiotics, gentamicin and tazocin. At this stage we don't know where is the infection and possibly never will. Her temperature is down this evening so hopefully the antibiotics are working.
We were admitted to Ward 10, the neurosurgical ward (where we started)around 6am. Niamh was tired but felt better thanks to the wonderful calpol. She was v happy to see in the bed opposite her, her good friend Hifsa. Emilie was also v happy when she came to play this afternoon. Hifsa and Emilie had a lovely time. Having not seen Hifsa for a few weeks, I had hoped she was home with her family. I am finding it difficult seeing her weakened from a recent surgery (not brain).
Niamh on the whole had a good day. She was sick again at lunchtime, so so far two tubes today. She is struggling a little with her poos and complains of lower back pain. The doctors think it is related to her passing stools.
The consultant is planning her next MRI for the end of cycle 5, prior to the scary cycle 6.
Blood Counts:
HB - 11.2.
WCC - <0.1.
Platelets - 96.
Neutrophils - 0.
CRP - 25.
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always thinking of you all. inshallah the next scan will be good news.
ReplyDeletelove to all
sadia x