Niamh is having a lovely time at home. She is feeling so much better. The sickness seems to have gone for now. She is able to cope with boluses (instead of continuous feeds). Now that she is on full feeds, she hopefully will put on a little bit of weight before starting the next round. The oncologist has mentioned a few times that a healthy weight helps cope with the treatment.
Niamh has been a lot more alert over the last few days, very sharp at times. She has been very keen on improving her walking. She wants to be able to do it by herself. The physio came yesterday morning and she was very happy with her progress. Niamh is now able to stand up from sitting on her own and she can also lean down to pick something up from the floor. A bit hard on the knees, but she gets there (still holding on to my hand though).
Despite our encouragement, she hasn't been interested in trying food. Hoping she will before we go back in next week.
As far as her communication is concerned, it is still quite tricky. She is trying hard. She is able to make sounds which is a start they say. She communicates quite well with signs, not specially the Makathon signs, more signs that she is making up herself. Yesterday she pointed at the trampoline and started bouncing on the sofa. Message was clear.
Niamh is still on gcsf. Today should be the last injection.
Her blood counts yesterday were:
Hb - 9.5.
WCC - 4.3.
Platelets - 98.
Neutrophils - 3.
She will have another blood test on Friday. Hopefully she will not need any more platelets then and will be able to start cycle 5 on Monday.
Niamh enjoyed seeing all her grandparents yesterday. She is so happy when she sees them, she likes to show them what she can do.
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