We are home!
Niamh had a nice evening last night, she fell asleep watching Little Bear around 9.30pm. The nurse came around 10pm to do some obs and for a nappy. When Niamh is on a lot of fluids as she has been over the last few days, nappies have to be changed very regularly and weighed to check her fluid balance. Unfortunately the nappy change didn't go too well, Niamh woke up and was sick everywhere. After a good wash and in a nice clean bed, Niamh ended up having a lovely night sleep. I must admit, if there is to be a vomit in the night, 10pm is a much kinder time than 3 in the morning.
Niamh had a new Ng tube put in first thing this morning. The nurse insisted on doing it even though Niamh was asking me to do it. A little frustrating as Niamh is usually calmer when we do it and gets over it much quicker.
Niamh was happy and smiley all morning, she got a little tired in the afternoon but was fine again after her sleep, specially once Emilie had arrived. She was very very very happy when we talked about going home and even more waving goodbye to everyone.
Niamh has been on very low feed all day, 15ml per hour. She had a very small vomit around 4pm, tube stayed in, and another small vomit once we got home, tube out (daddy's driving!).
The neurosurgeons came to check on her this morning as now we have two bumps to worry about. There is some fluid on the top as before but also on the left where they made a small incision to pass one of the catheter. It is possible that it is worse today because of all the fluids she has been having over the last few days. The neurosurgeons were not concerned, unfortunately we still are.
We are waiting for the oncologist to decide when Niamh will start the gcsf, injection in her leg which helps speed up the recovery of her white cells. It is likely to start on Tuesday or Wednesday.
Niamh's counts today were:
Haemoglobin - 8.8.
White Cells - 1.1.
Platelets - 76.
Neutrophils - 0.9.
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