Niamh needed platelets today, they had gone down to 39. Even though we expected it, we can't help but be a little disappointed as this means that cycle 5 will now be postponed, most likely to Monday in a week, ie. further delay in her treatment. On a positive side, it does mean that Niamh may have a week at home (if no fever) and also it gives her tummy a chance to recover a little.
Niamh has had a nice day today, she really enjoyed going on the swings in the garden. She has spent quite a bit of time outside which is nice. She was not too impressed by our family trip out to Ward 15 this afternoon for a platelet transfusion. She particularly did not like the gcsf injection. We don't know yet if this was the last one for this cycle or if she will have another one tomorrow. Her neutrophils today were 0.8, so still quite low. She has now been having gcsf injections every day for the last 13 days. She's had enough!
Niamh has been doing well with her feeds. She hasn't been sick since yesterday lunchtime and her Ng tube is 48 hours old!!!
Niamh has had a slight fever since this afternoon. Grrr.
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