Cycle 4 - Day 23 to 25

Hmm, hard to catch up on three whole days but I will try.

Thursday was a good day. Niamh didn't 'sick' at all as Emilie would say. She enjoyed the beautiful British weather, bounced on the trampoline (gentle bounces obviously!), a few goes on the slide. It was a very nice day.

On Friday morning, I took Niamh to the hospital for a full blood count. We expected her to need platelets, but she didn't so we were home by lunchtime. Her counts were:

HB - 11.2.
WCC - 0.3 (starting to recover at last!!).
Platelets - 78 (unfortunately no way to know if they are on the up or down, they may still be going down).
Neutrophils - 0.2.

We then had a very nice and chilled afternoon until the nurse came to do the gcsf injection in her leg. Niamh saw the nurse, started crying and out it came. I unfortunately took most of it (kids!!!). Niamh then had to have gcsf, line dressing change and a new NG tube. Not a great hour. Luckily Emilie arrived then and cheered Niamh up. The ng tube only lasted a couple of hours, out it came again around 6pm. After a new Ng tube, and after watching an excited Emilie get ready for her school Easter disco, Niamh fell asleep peacefully and had a relatively good night.

Today Niamh has been pretty happy on the whole. She has been sick a couple of times, but the tube has miraculously stayed in. Relief!
We've had a lovely evening watching Shrek altogether on the sofa. Emilie reckons her daddy looks like Lord Farquaad (Emilie said it was the hairy tummy). I don't think I have laughed so much in a while!

So the plan:

Niamh will have full blood counts done tomorrow morning by the community nurse. If her platelets are showing signs of recovery, she may start cycle 5 on Monday. If her platelets have gone down and she needs a transfusion, cycle 5 will most likely be postponed to the following week.

And finally the next MRI scan has been booked for 18th April. This may change.