Niamh vomited her tube last night around 10pm. We decided to wait till the morning to pass a new tube. She has been on IV fluids since we were admitted so they were just increased to make sure she does not get dehydrated.
The night was okay, she woke up a few times and seemed uncomfortable but on the whole she was fine. Her temperature was stable, around 37.
She seemed happy this morning. We were moved to Ward 9 in late morning as Ward 10 had new admissions. Niamh has settled well in the new ward and has been enjoying the attention from the friendly nurses. She did lots of playing this afternoon.
Unfortunately we are having a bit of a Ng tube nightmare again. She had a new tube at 8.30am, it came out again at 4.30pm, a new tube again at 6.30pm and that one has come out again. She is not even on full feeds.
Also she is having a lot of soiled nappies, most likely as a result of the antibiotics. Her bottom is very sore once again despite having changed her nappy every 30 minutes at times.
Her temperature seems to be creeping back up as well this evening. The nurses are keeping a close eye on it. It hasn't reached 38 yet.
Niamh also needed more platelets today and had a transfusion late afternoon.
Blood Counts:
HB - 8.6.
WCC - 0.
Platelets - 49.
Neutrophils - 0.
CRP - 65.
Hoping her White cells recover over the next few days.
On the positive side, Niamh's head is looking very well at the moment, no bump. The shunt seems to be working once again.
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