Niamh Vs Brain Cancer: Cycle 4

Wednesday, 2 March 2011

Cycle 4 - day 1

Niamh had an okish night, she woke up a few times in pain or discomfort. She was awake quite early and then fell asleep for the whole morning.

She hasn't had a fever since last night; however she seems to experience pain somewhere every now and then. Once again she won't say where. She had some paracetamol at lunchtime which helped. We ended up having a nice afternoon.

Her CRP is 31 today, it was only 3 yesterday so it shows she is definetely fighting some kind of infections. It would be nice to know where.

She started cycle 4 this evening (after a 3 and a half week delay).

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Niamh's Story

On 21st October 2010 Niamh was diagnosed with a Supratentorial Primitive Neuroectodermal Tumor (PNET), a type of brain cancer.

Niamh has had three surgical procedures to remove the tumor, four rounds of Chemotherapy (Headstart III) and another three surgical procedures to relieve a build up of cerebrospinal fluid in her head.

After the fourth round of chemotherapy Niamh's cancer has progressed. The next treatment option is craniospinal radiotherapy with a boost to the tumour location.

Six weeks after radiotherapy Niamh's tumour has progressed again. Though very difficult, we believe it is kindest to Niamh to end her treatment here.

Niamh and we are now in the excellent care of Acorns Children's Hospice where we will help make sure Niamh enjoys the best possible time with her sister Emilie.