Cycle 3 - Day 15

It is actually day 16 in the morning.

During the night on Sunday, Niamh didn't sleep well. She was sick on a couple of occasions and didn't seem to want to sleep. Her temperature had gone back up to 38 by 3am so she had more paracetamol through her central line.

In the morning her Ng tube still wouldn't test after last night's vomit at 7pm. It was decided that she would need a new one (once again). As her platelets were low, the doctors asked the nurses to wait till she had a transfusion before passing the tube. I was told she would have the transfusion around 2pm, she had it at 6.30pm. So Niamh didn't get to feed at all all day (a bit frustrating)

During the day Niamh had very low energy, still having loose nappies and was sick a few times. The mucositis seems better in her mouth but has now gone down her digestive tract.

At 7pm she had a gcsf injection followed by a new ng tube. It was quite a traumatizing episode again (better spare the details).

She has been on 5ml an hour feed through the night. She hasn't slept well again, four loose nappies in the night and a vomit at 6am. Her temperature was rising a little last night but never got higher than 37.8 and it went down by itself. Phew.

I have just asked for some oramorph as she seems in pain. She seems a bit calmer already.

Yesterday she couldn't have any pain relief as oramorph and codeine have to be given through her Ng tube and she didn't have one. Paracetamol which can be given through her central line is only given if they have a temperature as otherwise it can mask a temperature.

Hopefully a better day today.