Niamh had a very good sleep after last night's events. She woke up happy around 9am. She had a new Ng tube put in around 10 am and it went down smoothly to the right place. She could then have her morning keppra (anti seizure medicine which she missed last night), phew.
Niamh's had two chemo drugs today: etoposide and cyclophosphamide (same as yesterday).
The neurologists confirmed in the afternoon that the keppra can be administered IV (through her central line). This is a great relief, especially as her ng tube came out again today around 4pm. As she can have the keppra IV this evening, the doctor agreed to wait till tomorrow morning for a new ng tube . It is nice to have both her cheeks to kiss!
One of the neurosurgeons came to review the fluid on top of her scar. It is quite firm to the touch which is a bit worrying. They will come every day to review it. The shunt is still a strong possibility at this stage.
Apart from all this, Niamh has had a relatively good day, she does not have much energy but likes to see what's going on around her. We had a little go in the car, and played a quick game of hide and seek with one of the other 6 year old patient. She was slightly at an advantage though as she was not attached to anything and she could run. Niamh, however had to be carried by me (she's pretty heavy!) and was attached to a few drips.
Annoyingly Niamh's now had a couple of loose nappies so there are talks of moving to an isolation room this evening. A bit earlier than last time :(
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