Niamh Vs Brain Cancer: Cycle 3- Day 5

Friday, 14 January 2011

Cycle 3- Day 5

Niamh has had a nice day today, she is a bit more tired than yesterday though. The nurse put her Ng tube back in at lunchtime, it went relatively smoothly. She is now back on feeds, 5 ml an hour (very little).

Niamh started the folinic acid (antidote to the methotrexate) at 5.30pm today. She will have it every 6 hours till she is rescued.

We are still in the cubicle but Niamh is no longer in isolation. She is allowed to go into the Ward.

The fluid on her head seems to be less today.

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Niamh's Story

On 21st October 2010 Niamh was diagnosed with a Supratentorial Primitive Neuroectodermal Tumor (PNET), a type of brain cancer.

Niamh has had three surgical procedures to remove the tumor, four rounds of Chemotherapy (Headstart III) and another three surgical procedures to relieve a build up of cerebrospinal fluid in her head.

After the fourth round of chemotherapy Niamh's cancer has progressed. The next treatment option is craniospinal radiotherapy with a boost to the tumour location.

Six weeks after radiotherapy Niamh's tumour has progressed again. Though very difficult, we believe it is kindest to Niamh to end her treatment here.

Niamh and we are now in the excellent care of Acorns Children's Hospice where we will help make sure Niamh enjoys the best possible time with her sister Emilie.