Cycle 3 - Day 2

Today has been a long long day. Niamh has had etoposide and cyclophosphamide.

Niamh was okish this morning, she had a brief session with the physio during which she showed off her standing. She was tired quickly and wanted to go back on the bed. After a bit of tv, she was keen to go on a little tour on one of the little cars. Again she was tired quickly and wanted to go back to bed. Had an hour sleep and then woke up vomiting. First vomit of many as we are now up to about six or seven. The ng tube came out around 7pm. The nurses tried to put a new one in at 7.45pm but Niamh got very very distressed so they didn't get to push it far enough. Niamh is now soundly asleep and we are having to keep waking her up to push the tube further in to get it to test. Getting very stressed as she is due her keppra, anti seizure medicine and if we can't test the tube, we can't pass the medicine. The doctors are now looking at possibility to give it through her lines.

Niamh enjoyed having Emilie over for a few hours this afternoon. She even danced to nursery rhymes at one point.

Niamh seems to have grown a lot over the last 3 months, not only she is 15.3kg, was originally 14kg, but also she can't fit in one of the little car she used to go in. Her legs are too long. The doctor said it is good that she has a healthy weight as it usually helps to cope with the chemo drugs and infections.
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