Cycle 2 - Day 24 Blood Counts Recovering at last

Niamh had a much better day today. Standing is no longer enough, she wants to walk now. She is very determined. Her standing is improving each day. She is already taking for granted that she can crawl around. It makes such a difference. Her other favourite activity is climbing up on beds and sofas and back down. We seem to get tired quicker than she does.

The nurse came twice today, first thing in the morning for blood test and mid afternoon for her gcsf injection. Her blood counts are starting to recover, haemoglin was 10.6, white cells 2.4, neutrophils 0.6. However her platelets were low at 37. They usually do a platelet transfusion when under 50, but the doctors want to wait one more day hoping that they are on their way up. In the meantime, we have to watch out for any bruising or bleeding.

Niamh was happy today to go and get Emilie from school. Emilie was overjoyed when she saw her sister waving at her. Niamh got the biggest cuddle and kiss from her sister.

Liz, a Clic Sargent Play Specialist, came to see Emilie at home today after school. (Niamh was very scared at first as she thought she was another nurse). Liz will now come on a weekly basis to do fun activities with Emilie and support her through it all. Emilie responded very well to Liz and seemed very happy for the attention. When asked: 'Emilie, should I come next week or the week after', Emilie said next week.