Niamh Vs Brain Cancer: Cycle 3

Sunday, 16 January 2011

Cycle 3 - Day 7

Niamh has had an okay day, she has been pretty tired. Her blood counts are going down quickly: Haemoglobin 7.5, White cells 1.2, Platelets 95 and Neutrophils 1.2. She is having a blood transfusion this evening. (they transfuse when haemoglobin under 8).

Niamh is still happy with her friend Hifsa, she fell asleep this afternoon holding her hand. It is hard to know what Niamh is thinking about her illness as she is not able to speak. She must feel close to her new friend as she also has an Ng tube, and the nurses also come after her to check her blood pressure, etc.

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Niamh's Story

On 21st October 2010 Niamh was diagnosed with a Supratentorial Primitive Neuroectodermal Tumor (PNET), a type of brain cancer.

Niamh has had three surgical procedures to remove the tumor, four rounds of Chemotherapy (Headstart III) and another three surgical procedures to relieve a build up of cerebrospinal fluid in her head.

After the fourth round of chemotherapy Niamh's cancer has progressed. The next treatment option is craniospinal radiotherapy with a boost to the tumour location.

Six weeks after radiotherapy Niamh's tumour has progressed again. Though very difficult, we believe it is kindest to Niamh to end her treatment here.

Niamh and we are now in the excellent care of Acorns Children's Hospice where we will help make sure Niamh enjoys the best possible time with her sister Emilie.