A daddy night and day at hospital today and last night. Niamh slept most of the evening letting me get on with some reading at the bedside. We had the odd distraction when Niamh would wake up in discomfort and I'd roll her over and replace her pillow coverings for clean and dry ones. Niamh's sore mouth and throat made for plenty of dribble and some blood this evening. I was really hoping that this would be the peak of the Mucositis. We gave Niamh oral morphine some time late evening and she continued to sleep.
Ooops, 2am big vomit and ng tube out.........I was pleased that there was no blood in her sick just lots of normal messy vomit. It was a three person cleanup job. As niamh was still sleepy and had sore mouth I decided to hold off on putting back the ng tube till morning. This meant no oral morphine till then, but she did seem to be sleeping ok so i hoped she could manage without it.
The early morning was quite tough. Niamh was definitely missing her pain relief though I felt her mouth was a little less sore (I think yesterday was the peak). Niamh was a bit better later in the morning after sleeping a little more, she enjoyed playing with her visitors.
When Dr came later we checked whether Niamh should move to IV (intra venous) morphine or we should repass the ng tube. IV morphine seemed excessive so Dr choose the potentially tough option and ordered a new ng tube. The tube went in easily after all and Niamh had some oramorph as soon as she could.
All this time Niamh nappies got a bit runnier so about 3 pm we got upgraded to a private room (isolation). Quite a nice one this time spacious, storage, tv. Niamh slept some more. and "sicked" some more.
About 7.30 pm Niamh's temparature spiked above 38 degrees despite already being on Tazocin (antibiotics). She has been given paracetamol, blood cultures taken and has been prescribed Vancomycin (another antibiotic). We're a bit worried what sort of infection she has as she was already on an antibiotic, hopefully the Vancomycin will help.
After paracetamol Niamh perked up a bit and was enjoying some very big cuddles with her mum, before sending her dad home with a kiss and a wave.
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