Niamh has had another lovely day, a bit more energy than yesterday. She did some baking with some of the older children this morning (nice chocolate cookies), then she had a good session with the physio and then went around in the little car for about an hour. We had to follow Hifsa who was on a bike. Hifsa makes Niamh happy, Niamh happy makes us all happy so great Hifsa is around.
She had a good afternoon sleep but woke up quite unsettled. Not sure what was wrong but suspecting stomach cramps. An hour later she was back in the little car following Hifsa.
Niamh started having gcsf again yesterday. The gcsf is to help her white blood cells recover faster. She has had about 10 gcsf injections during each cycle so far. The injection is in the leg, right leg on one day, left the next, etc. She is pretty good with it.
Her Ng tube was put in around 11am. She started on 15ml an hour feed and is now on 20ml an hour. We need to get her back to at least 50 ml an hour. As she has been on very little or no feed for almost a week it may take a little bit of time to get her back to the right amount. As she is not getting enough through the Ng tube yet, she is still getting fluids intravenously.
Niamh should be getting at least 650 ml feed and 350 ml water each day.
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