A much better day today.
Niamh had a good 12 hour sleep last night, first time ever on this ward. She only woke up at 10am so the morning was brief. Rachel, the student nurse loved by both Niamh and Emilie passed a new Ng tube around 12 with the help of Auntie Caitlin. It went it first go. Niamh then had a good 10 minute session with the physio. By the time I arrived she was standing supported by Caitlin and smiling. It was lovely to see.
By the time physio was finished Niamh fell very tired and quickly fell asleep. She had been doing well without oxygen during the morning but we had to put the oxygen back on during her nap.
When she woke up around 4pm, she was a bit upset to start with, she had a small vomit (tube stayed in, phew) and soon cheered up. She was keen to play and make things which was nice. Very cuddly too. She's had a good evening, and has fallen asleep peacefully.
Bottom update: much much better!
Blood counts today are looking good:
HG: 9.7, platelets 122, White Cells 11.3 and neutrophils 5.6. She had her last gcsf this evening.
The Speech and Language specialist came today and suggested that we introduce some signs to help Niamh communicate more easily.
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