Niamh is doing ok today. They have changed her feeds, it now includes maxijul, which is a thickener. The idea is that she digests her feeds quicker so that the tube doesn't come out when she vomits. It seems to be working so far as she has vomited four times today and the tube has stayed in. First day of the week when she hasn't had to have a new ng tube. hmm, day is not over...
She is suffering quite a lot from mucositis as a result of the chemotherapy, her mouth, throat and gut are very very sore. She had some oramorph this afternoon (morphine) and she was much better after it.
Her MRI scan will not go ahead on Monday 24th Jan as originally planned. The consultant is concerned about her having general anaesthetic when she is neutropenic. Because of her young age, she needs general anaesthetic to do the scan as she needs to lie in very noisy machine for 45 mins and not move. She will now have the scan on 7th February.
Her platelets are low today so platelet transfusion this evening.
She enjoyed playing "what's the time mr wolf" with Emilie and Hifsa for a while this evening. Once again being attached to drip and food made the run from the wolf a bit tricky. She didn't mind.
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I gather the mucositis is really uncomfortable and alas nothing specific to help, but it sounds like she is tough as ever. I am glad the tube is staying in and all our fingers are crossed for the seventh!
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