Cycle 3 - Day 25

Niamh has had another lovely day. If only we could be at home!

Oxygen is still a problem but it seems to be slowly getting better. She needed oxygen last night for the first part of the night. I took it off around 3am and her oxygen level remained above 94. Her afternoon sleep went well as well - no oxygen required.

The doctors are keen for us to go home but they want her to have a full night sleep without needing oxygen. So fingers crossed, we may be able to take her home tomorrow or Saturday.

The physio wasn't here today. We had our own session with the help of auntie Caitlin. Niamh is making good progress with her standing and cruising.

Niamh also had a very fun session with the speech and language therapist, Sarah. Sarah came with some bubbles and was showing Niamh how to ask for more using a sign (Makaton). Niamh loved it. Sarah then made Niamh's dollies dance and Niamh had to use signs to say 'Stop' and 'Go again'. Niamh really enjoyed being in control of what was happening. She even got her dollies to ask for more bubbles using signs. [Mr Tumble uses Makaton]

Emilie who hasn't be able to come into the hospital recently as she also has had a virus (possibly the same one) is very keen on the Makaton signs. She is even trying to make up some new ones.

The consultant came at the end of the day. He is going to speak with the anaesthetist tomorrow regarding the scan on Monday. He was hoping she would have the scan under general anaesthetic but is not sure the anaesthetist will be keen because of her recent chest infection. Sedation may now be a preferred option.