Niamh Vs Brain Cancer: Cycle 3

Friday, 4 February 2011

Cycle 3 - Day 26

Home at last with two very giggly girls. Emilie is being fantastic, she is doing everything to make Niamh laugh and Niamh is laughing!!

Niamh's oxygen level was relatively stable through the night so the doctors were happy to let us go. We were hoping for an earlyish discharge but once again didn't leave the hospital till 6.30pm. It is so nice to be reunited at home as a family after a month in hospital.

The anaesthetist seems keen to go ahead with the general anaesthetic on Monday which is good. The doctors have warned us that we may need to stay overnight if her oxygen drops again after the general anaesthetic.

Hopefully a peaceful weekend before the big day on Monday.
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Niamh's Story

On 21st October 2010 Niamh was diagnosed with a Supratentorial Primitive Neuroectodermal Tumor (PNET), a type of brain cancer.

Niamh has had three surgical procedures to remove the tumor, four rounds of Chemotherapy (Headstart III) and another three surgical procedures to relieve a build up of cerebrospinal fluid in her head.

After the fourth round of chemotherapy Niamh's cancer has progressed. The next treatment option is craniospinal radiotherapy with a boost to the tumour location.

Six weeks after radiotherapy Niamh's tumour has progressed again. Though very difficult, we believe it is kindest to Niamh to end her treatment here.

Niamh and we are now in the excellent care of Acorns Children's Hospice where we will help make sure Niamh enjoys the best possible time with her sister Emilie.