Niamh Vs Brain Cancer: Pictures and Videos

Sunday, 27 February 2011

Pictures and Videos

Another lovely weekend. Niamh keeps on making good progress with her walking and standing.

Pictures:

1) Niamh enjoying a bike ride with daddy. The rucksack contains Niamh's feed. She is a girl, she can multitask (eat and ride a bike at the same time).

2) Niamh and Emilie enjoying 'au pas, au trot, au galop' with Auntie Caitlin. Caitlin moved in with us last November to help with ... everything. Without her we would be totally lost. She is not only a fantastic help on all front but also wonderful support. Plus she is a great nurse.

Videos:

1) Egg and spoon race with Emilie.

2) Egg and spoon race by herself + standing on her own at the very end.

2 comments:

Anonymous27 February 2011 at 20:45
It's fantastic to see you all having such fun and the most heartwarming thing I've seen in ages! Hope to see you soon and love to Niamh, Emilie, amazing auntie Caitlin, Alex and big hug to you Helene, Pia xxx
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anne-marie reidy1 March 2011 at 09:48
Hi Helene,
So sorry haven't been in touch. Was so delighted to chat with Michael and Annie last week.Your blog is great. Your kids are so happy and close, they are a joy to watch. Good luck with the next round of treatment. Love, Anne-Marie in Tuam
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Niamh's Story

On 21st October 2010 Niamh was diagnosed with a Supratentorial Primitive Neuroectodermal Tumor (PNET), a type of brain cancer.

Niamh has had three surgical procedures to remove the tumor, four rounds of Chemotherapy (Headstart III) and another three surgical procedures to relieve a build up of cerebrospinal fluid in her head.

After the fourth round of chemotherapy Niamh's cancer has progressed. The next treatment option is craniospinal radiotherapy with a boost to the tumour location.

Six weeks after radiotherapy Niamh's tumour has progressed again. Though very difficult, we believe it is kindest to Niamh to end her treatment here.

Niamh and we are now in the excellent care of Acorns Children's Hospice where we will help make sure Niamh enjoys the best possible time with her sister Emilie.