New plumbing

We arrived on Ward 10 nice and early at 8am. Niamh was v happy, spent most of the morning being cheeky, showing off her standing to the nurses and getting lots and lots of attention from them all. For the first time the clown doctor came when she was awake; lots of giggling!

At 3.30pm she was taken to theatre. We were called to the recovery room at 7.30pm. We are now back on the ward, she is asleep and seems well.

The neurosurgeons did not think anything of our deflated bump story so our hopes of not needing surgery were short lived. They still wanted to wait for Mr Kay, Niamh's consultant before making any decisions though. Mr Kay came at around lunchtime and said the CT scan from Friday looked good. The shunt is working great but unfortunately there is still some fluid on the front and left side that is causing pressure. It seemed best to act on it now.

There were many options but they decided to go for a strata programmable valve and two catheters. One on each side of her head linked together by a Y connector which drains through the valve under the skin at the back of niamh's head, down to her tummy.

We're very hopeful that Niamh's new plumbing is going to help her feel better.
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