Lovely morning on Ward 10. Emilie came to play with Niamh, we just sat back and watched them play. Niamh was in total adoration for her sister, she kept cuddling her. Emilie also helped with Niamh's physio session. Becci, the physio soon realised that Niamh would do anything that Emilie asked. So, great results: crawling, kneeling and standing (the straightest standing we've seen so far).
Niamh was discharged after physio and we were home for 1pm. Still can't quite believe that we are home 36 hours post op but it is great.
Niamh has done lots with Emilie this afternoon, no sleep. She is no longer shaky, seems to be able to concentrate on tasks for much longer and generally looks well.
Monday's surgery really shows that Niamh still had a lot of pressure in her head. We are wondering now whether some of the vomiting over the last few weeks were partly due to the pressure in her brain and not just the chemo.
Anyway plan now is ct scan on Tuesday and appointment with oncologist. If all well (ie. No infection or shunt blockage), Niamh will start cycle 4 on Tuesday. The first 10 days of cycle 4 are at home so we may be home for a good couple of weeks!!! That would be the longest length of time we have spent at home as a family in 5 months.
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Great to hear Niamh is doing very well. Inshallah all will go well too with the start of cycle 4 of the chemo.
ReplyDeleteAlways thinking and praying for you all.
Lots of hugs to Emilie & Niamh.