Niamh had been doing pretty well over the last 48 hours so we went into the hospital with hope this morning. We were aware though that the bump on the top of her head (fluid) which had disappeared after the shunt surgery was back a little on the left side but tried not to think too much of it.
The CT scan showed that the fluid on the right hand side of her head (under the skull) has gone which is great news; however there is still a lot of fluid on the left hand side (under the skull) which explains the build up of fluid on the top which we can see. We don't think we will ever know if that fluid had actually gone and is now back, or whether it never went.
It is very confusing as 1) the bump on the top of her head had totally gone for a week and it even looked like the skin on her skull was being sucked in, so what has caused it to come back on the left (many unanswered questions); 2) she is much better now and yet there is more fluid, ie more pressure in her brain.
Niamh will now need a shunt on the left hand side of her brain too. The oncologist would like the surgery to take place as soon as possible to avoid too much delay in her treatment. She has been put down on the emergency list for Monday but it all depends on other emergencies over the weekend. If she cannot have it on Monday she will have it on Wednesday.
We don't yet know which type of shunt or where exactly they will be putting this new shunt. They are waiting for the Consultant to decide (back from his holiday on Monday, phew).
So a bit of a setback, we were looking forward to a week at home during Emilie's half term, now it will be another week on Ward 10.
On the positive side, Niamh has been so much better today, she is still trying to say a few words and she is being very smiley and much happier than earlier in the week. She seems to have problems at times controlling her emotions but we won't worry about that too much for now.
Niamh also had a hearing test this afternoon and she passed it which was a relief.
We've had a lovely evening and are looking forward to a nice family weekend before another week in hospital.
No comments:
Post a Comment