Niamh Vs Brain Cancer: Shunt - Day 4 Post Surgery

Sunday, 13 February 2011

Shunt - Day 4 Post Surgery

Niamh is still on ward 10, she is still struggling keeping her feeds in so needs to stay a bit longer. Two vomits today and two new Ng tubes; on a positive side, Alex is now fully assessed to pass Ng tubes! It will make life much easier when we are at home. My turn to practice passing the tube. Hopefully not tonight though.

Niamh has had a nice day on the whole, despite a few moments of nausea. She really enjoyed seeing Emilie and Emilie's colorful nose (no black eyes luckily).

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Niamh's Story

On 21st October 2010 Niamh was diagnosed with a Supratentorial Primitive Neuroectodermal Tumor (PNET), a type of brain cancer.

Niamh has had three surgical procedures to remove the tumor, four rounds of Chemotherapy (Headstart III) and another three surgical procedures to relieve a build up of cerebrospinal fluid in her head.

After the fourth round of chemotherapy Niamh's cancer has progressed. The next treatment option is craniospinal radiotherapy with a boost to the tumour location.

Six weeks after radiotherapy Niamh's tumour has progressed again. Though very difficult, we believe it is kindest to Niamh to end her treatment here.

Niamh and we are now in the excellent care of Acorns Children's Hospice where we will help make sure Niamh enjoys the best possible time with her sister Emilie.