Niamh Vs Brain Cancer: Some good news

Monday, 29 November 2010

Some good news

After a tough night and morning, Niamh has actually had a relatively good afternoon.

The oncologist came over in the evening and said that both bone marrow tests were clear (phew) which is great news.

He also said that Niamh is now 'rescued' from Friday's chemo. Off the fluids at last.

Busy day tomorrow: hearing test in the morning, physio, speech and lang, vincristine dose and then we might go home!!!

1 comment:

paultomlins30 November 2010 at 19:15
I had to pop into the Children's to see a patient on Ward 10 over the weekend, but didn't know if you were all up for visitors.

Glad to hear she is recovering from last pulse.

Fingers and toes crossed for home tomorrow.

Paul
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Niamh's Story

On 21st October 2010 Niamh was diagnosed with a Supratentorial Primitive Neuroectodermal Tumor (PNET), a type of brain cancer.

Niamh has had three surgical procedures to remove the tumor, four rounds of Chemotherapy (Headstart III) and another three surgical procedures to relieve a build up of cerebrospinal fluid in her head.

After the fourth round of chemotherapy Niamh's cancer has progressed. The next treatment option is craniospinal radiotherapy with a boost to the tumour location.

Six weeks after radiotherapy Niamh's tumour has progressed again. Though very difficult, we believe it is kindest to Niamh to end her treatment here.

Niamh and we are now in the excellent care of Acorns Children's Hospice where we will help make sure Niamh enjoys the best possible time with her sister Emilie.