Sunday was quite a peaceful day for Niamh. She enjoyed playing, watching dvds and seeing her sister.
By the evening she became very unsettled, couldn't get in a comfortable position and was itchy. She kept wanting to scratch the scar on her head, behind her ears and also her lines. Her tummy seemed to also be causing her discomfort (many loose nappies). Despite all, she did fall asleep around 8pm. Unfortunaly woke up around 9.30pm with more itchiness and discomfort and loose nappies. She was given codeine and pruriton around 11pm (couldn't watch her in such discomfort and possible pain anymore). At 11.30pm we were moved to an isolation cubicle due to her loose nappies. They are most likely caused by the chemo but they need to be safe. It is in a way better for Niamh as easier to rest (less noise).
At 7am this morning, she was sick again. This time it was quite scary as her ng tube came out through her mouth. A good thing they told me not to panic if that happened. She was v good and let me pull it out from her nose.
After that, started the mad morning of trying to place a new ng tube down her nose. Three traumatic attemps but eventually we got there. Her morning medicines were delayed by 5 hours!!
After the stress of the morning, niamh is having a long late morning-lunch nap. She needs it.
We are waiting to talk to the doctor regarding the itchiness, her tummy and a few other things that concern us. Most likely all side effects of the chemo.
Niamh's language skills are also a concern at the moment. Hoping that this is due to her not feeling well.
Why do kids have to go through this! Simply not fair:(
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