Niamh had a relatively decent night despite being woken up at 10pm, 2am and 6am for nappy changes and obs.
Today, Niamh had exactly the same treatment as yesterday. She is def looking more tired, red eyes now. Despite being sick on about 6 occasions throughout the day, Niamh has been smiling at everyone. Not sure how she does it.
In the morning, she wanted to play with everything we could find (puzzles, sticker books, matching pairs), had to take a trip to the play room to find extra toys. Around 11am she had physio whilst attached to all our lines. She was v cheeky and giggling for most of it.
By the time the afternoon came, things got a little harder. Less energy, feeling more sick. Yet once she vomited she felt better and would sit up again.
This evening we have been around the corridors with the various attachments. I can't wait to hold her without dragging all the equipment attached to her.
Tomorrow likely to be a tough day. Dressing on her central line needs to be changed. I have been warned the experience may be pretty traumatic. She will also get a high dose methotrexate from which she will need 'rescue' over the following three days. Sounds pretty scary.
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