Niamh had a great morning and afternoon, she looked much better than yesterday. Keen to do her physio this morning and enjoyed going around the corridors of the ward in her little car.
Her chemo started at 2pm, a very high dose of methotrexate, a very very yellow liquid. She had it over 4 hours.
Niamh fell asleep around 3.30pm. By the time she woke up an hour later, she looked miserable. She vomited a little. I was then quite alarmed by her yellow pees but was reassured by the nurses it is quite normal. Niamh was unsettled for about an hour after waking up. The nurse decided it may be as good a time to change the dressing on her central line. I think she was right as it wasn't that bad after all. By 5.30pm Niamh was smiling again, playing peekaboo with the nurses.
It is now 7pm, she is watching upsy daisy and iggle piggle and holding my hand. She looks tired but her skin is still a nice color. She is smiling. She seems to get a bit upset when she passes urine: horrible chemicals. We' re changing nappies every 30 to 45 mins!
Slight error in this morning' s entry. The bone marrow biopsy shows no cancer cells but they do not yet have the results of the bone marrow aspiration (liquid if I understand it right).
Over the next few days Niamh will have folinic acid to rescue her body from today's drug. They will check her blood everyday to see how much toxicity is still in the blood and as soon as it is the right amount we should be able to go home. This cycle also has two more doses of vincristine next tuesday and the following tuesday.
Hopefully a good night ahead...
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