Niamh had a lovely sleep and woke up in a happy mood. Kids are so forgiving.
Mr Kay, the neurosurgeon who operated on her twice (our hero so far) came to see her. He said she looked fantastic. Dr Peet the oncologist came soon after and also commented on how well she is doing. I take it as good news although we've only had one day worth so far.
At 10.30 chemo started, first etoposide for two hours followed by cyclophosphamide. She did well all morning even did some painting with lovely Irish Paula, the Occupational Therapist. Around 2pm she started looking a little pale as if she was about to be sick. She wasn't. She fell asleep for an hour instead. Since she has been smiling, but doesn't have much energy. Sits up a little but prefers lying down and looking at what people are doing (nosy side hasn't changed).
When the physio came around 3ish, I told her that Niamh was too tired for physio today. Niamh did not agree, she sat up, gave her a big smile as if to say: I want to do it. We went to the playroom, had a sit down to play but N quickly realised she was too tired for physio. Walked to the fishes instead.
Only 6pm now so let's wait and see how evening goes. Same drugs tomorrow. This is lasting forever...
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