Niamh Vs Brain Cancer: Bit More Sleepy

Sunday, 28 August 2011

Bit More Sleepy

We've had some more lovely days at acorns. We've been in the spa everyday before bedtime and Niamh has really enjoyed her shower afterwards when she plays with the water.

Niamh seems more settled as pain control and constipation seem more in balance now that she has been taking Movicol.

She is getting a little bit more sleepy during the day and is taking a nap for 2-3 hours in the day. This could be the period of somnolence associated with Radiotherapy normally 6 - 12 weeks after treatment.

Niamh likes playing repetitive games at the moment. games with beads or moving things from one bowl or box to another. She has become quite compulsive with these games. She particularly likes moving daddy's breakfast cereal from one bowl to another, including milky weetabix!

On the whole Niamh seems happy with her routine, is settled and sleeping well.

1 comment:

Anonymous29 August 2011 at 10:04
quelle jolie photo toutes les 2 enlacees!nany
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Niamh's Story

On 21st October 2010 Niamh was diagnosed with a Supratentorial Primitive Neuroectodermal Tumor (PNET), a type of brain cancer.

Niamh has had three surgical procedures to remove the tumor, four rounds of Chemotherapy (Headstart III) and another three surgical procedures to relieve a build up of cerebrospinal fluid in her head.

After the fourth round of chemotherapy Niamh's cancer has progressed. The next treatment option is craniospinal radiotherapy with a boost to the tumour location.

Six weeks after radiotherapy Niamh's tumour has progressed again. Though very difficult, we believe it is kindest to Niamh to end her treatment here.

Niamh and we are now in the excellent care of Acorns Children's Hospice where we will help make sure Niamh enjoys the best possible time with her sister Emilie.