We had a lovely weekend, camped in Alex' parents' garden on Saturday with Ada and George. The girls loved it. Niamh was v excited about sleeping in the tent. I was a bit anxious about it but it went v well and Niamh slept all the way till 6.30am which for camping is pretty good.
Unfortunately she developed a small temperature on Sunday during the day. It stayed under 38 so we were hoping it would go away by itself. Yet by Monday evening, typically minutes before Adam and Chantal's arrival Niamh's temperature spiked. She was admitted on Monday evening. We are on Ward 10, the neurosurgical ward. As she is not neutropenic and as she has had a cold for now 10 days they first tried to treat her with amoxyllin which is a bit kinder than gentimicin. Unfortunately she was still warm and unsettled all day yesterday and when her temperature spiked to 38.8 last night they changed her antibiotics to tazocyn. I wish I could say it is making a difference but nope. She is still warm today, still unsettled. We are waiting to see the doctors today to find out if they have any ideas what is causing her temperature.
On a neuro side, Niamh is doing well. She is doing a lot of walking in and out the ward. We have been to the playground downstairs a couple of times. Her right hand is weaker than it was. The physio reassured me that it is not specially a sign of tumour regrowth. She said that when children have a toning pb in their limbs it often gets worse as they get more active and grow taller. Hopefully more exercise will help. The toning in her legs seems fine at this stage.
Scan on Monday, hopefully we will be home before then.
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