Sunday

Niamh slept well last night I changed her pull up nappy with her asleep lying down as she was out for the count. She had paracetamol about 10pm which kept her fever down through the night. at 4am she was back to 38 point something and had some more paracetamol.

Liz, Niamh's nurse had warned me that Niamh would have to give a blood sample in the morning. Without Niamh's central line (which makes taking blood easy and painless) this would be a more manual job involving a dr, a needle and her foot. That central line was actually quite handy.

So Niamh was the ward 10, 5am wake up, alarm clock as she screemed "dr, stop sticking that **!*&&*! needle in my foot ......" in rather less words. She was very brave though, especially as we had to repeat the same thing later in the day.

In the morning Niamh was very tired, she had a sleep for a couple of hours. By lunchtime we were waiting for her fever to return as the paracetamol wore off. It did come back but slightly less than before, mid to high 37s. We were very relieved it didn't go above this. Fingers crossed that removing the line has done the trick.

Niamh did seem a bit poorly in the afternoon, she had a couple of sicks and we had to replace her tube twice. Hopefully it was just her getting used to the food again and fighting off the infection and her residual fever

Tonight her temp is still mid to low 37s so it still looks like we're going in the right direction.

Her blood counts today were:

HB 10.4

White cells 4

Neutrophils 2.5

Platelets 122

All good as well.

So, sleep tonight, ready for an MRI scan tomorrow. Big day.