No Scan for Niamh

Niamh didn't have an MRI scan today. She starved all day for her appointment at 3.30 and at 5 we were told that she would not get scanned today. The radiology department said "they would try to fit her in later in the week". You can imagine the way you feel when you're told this and you've known about this important date for 6 weeks.

We got clarification from Niamh's oncology consultant that he would speak with the head of radiology tomorrow morning. The earliest her scan will be is Wednesday as this is the next time they have a list for patients needing a general anesthetic. Ironically the builders were bringing in the pieces of Birmingham Children's Hospital's 3rd MRI scanner as I walked into the hospital, hopefully it will bring much needed capacity.

In the mean time Niamh was feeling quite good this morning and was up and about for her physio. This afternoon she was quite a lot grumpier and not quite her self. It may have just been lack of food. She seemed to lack energy and only wanted to watch her dvds. She was a bit shaky too. Temperature has stayed down in the low 37's which is great.

Unfortunately, Niamh was sick later when we started her food so we are a little concerned about her now. It seems like she should be getting better as the infection goes away but she seems to be getting a little worse in herself, just without the temperature. Time will tell, an MRI today could have also told, but now it's back to time. All could be explained by early late effects of Radiotherapy or many other things.

At the end of the day we were a little caught up in the riots in Birmingham, the childrens hospital was recommending parents not to leave and had locked their doors. It was quiet there when I left, I hope it stays that way through the night.

We'll update you on the scan date tomorrow when we know more.