Update on Protons

We've been more than a little quiet recently, in part because of the tough news about Niamh's cancer progressing and in part because of our uncertainty of her treatment.

To catch up, we've got ourselves into a situation now where Niamh is due to start radiotherapy here in Birmingham on 16th May. On the other hand we have the possibility in principle to treat Niamh with Proton therapy in Oklahoma starting on the same date.

Today we have to decide if self funded travel to the US for proton therapy is really the best thing for Niamh. We have to balance the risks of travel and self funded treatment in the USA against the benefits in reducing side effects of treatment. We have two main phone calls left to decide this, one with a Dr in Oklahoma and the other with the finance team at the proton therapy centre in Oklahoma.

If after weighing everything up we believe that treatment with Protons in the US is the way to go we will need to raise ~£150,000 in a very short time.

A key consideration is that Niamh's consultant oncologist is very specific that a delay in her treatment would reduce her chance of being cured.

We'll update the blog later when we know more.