The weekend has been a pleasant one, despite the miserable weather. Emilie was upset last night, she wants to be in France because it doesn't rain there! hmmmmm. Yet the girls enjoyed jumping in muddy puddles yesterday, Niamh loved it. Niamh is obsessed with 'Peppa Pig' at the moment. Emilie says that she is Peppa Pig and Niamh is George but a girl George. So Niamh was enjoying being George and splashing in the puddles. The bigger the puddle the better.
Niamh's favorite activity at the moment is dancing. I am ashamed to say that the girls like to dance on Rihanna 'xxx in the air' song, totally inappropriate lyrics but it does get Niamh moving and singing.
Niamh has been okay on the whole this weekend. She was sick a couple of times and needed her ng tube repassed. In the last 10 days we have had about 5 new Ng tubes. She is only sick once every two or three days but unfortunately the tube comes out every time.
Radiotherapy went well this morning. Niamh was very proud to show off her sister to everyone. Emilie was pleased to at last see where Niamh has been going every morning and meet the team that she has been hearing about. Emilie was great, she held and stroke Niamh's hand when Niamh went to sleep. By the time it was time to wake Niamh up, Emilie helped and got Niamh to smile and laugh. She wants to accompany us again tomorrow.
Niamh has put on weight over the last week, from 15.4kg to 15.6kg, same scale. It is a little surprising as she has been feeding less and has been sick a few times. Her blood counts today were:
Haemoglobin: 11.1 which is good.
White Cells: 1.9. Better than last week.
Platelets: 71. Down from last week but not too much of a drop this time.
Neutrophils: 1.2. Low, but not neutropenic.
Comme tu es gentille Emilie d aider ta petite soeur,tu es une adorable petite fille.
ReplyDeleteBravo Niamh tu as bien parlé tantot sur skipe,que de progres!!!!
J ai hàte de vous revoir tous.Gros bisous Nany.