Two weeks completed and so far so good. Niamh is doing well, possibly a little more tired but she still won't sleep during the day and still wakes up earlyish. The treatments on Wednesday, Thursday and Friday went smoothly. On Friday she took a long time to wake up. The anaesthetist said it was quite normal for the children to take longer on Fridays after 5 consecutive days of anaesthetic.
She has now settled quite nicely in her morning routine: hospital, teeth, vaseline on lips, head clean, full on moisturiser. No more screams, just a couple of attempts at pushing me away. Her mouth must be getting quite dry after treatment as she asked for more water in her mouth yesterday when brushing teeth. She took it from a spoon. Hopefully by the end of her treatment she will be drinking from a cup.
She had a very good physio session on Thursday morning. The physio feels that she is not far from walking unaided now. She still drags her right foot a little but it is improving. The main problem is that she lacks confidence in her ability to walk and stand unaided.
Her blood counts yesterday were still low:
Haemoglobin: 11.6 which is good.
White Cells: 1.4. Low.
Platelets: 94. Dropped again.
Neutrophils: 0.8. Very low, considered neutropenic, ie. very weak immune system.
The White Cells and Neutrophils have plateaued a bit, but her platelets are still dropping which is a concern. They will do another blood test on Tuesday morning. If her platelet counts are under 50 she will most likely need a platelet transfusion.
All in all, the last two weeks have gone relatively well. She looks well and happy. Next week Niamh will only have four treatments as Monday is a Bank Holiday.
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