Yesterday and today's treatments went very smoothly. The treatments go fast now. Niamh is in the radiation room under general anaesthetic for about 20 minutes, they then let her sleep for another 30 minutes before they gently wake her up. She always leaves with a lovely smile and blowing them all kisses. Helen, the specialist nurse, made her a sticker book for the 6 1/2 weeks of treatment with all her favorite characters. This week's page was Peppa Pig. Who knows what will be next week's? It brings a bit of excitement to our morning trip.
She also loves playing with their train track before her treatment when we get there early. It is perfect as she can play it standing up. Good for her legs.
Today we had to go the Children's Hospital after treatment as Niamh needed a blood transfusion. Her HB yesterday was 9.6 and they prefer it to be above 10. As they needed to do the cross match first, it took a while. We got there at 10am and left at 5pm. It was nice to have Granny and Poppa's company for a few hours and then Nanny's who is over for a couple of days. Niamh was lovely all day, full of smiles and cheekiness. All the staff were commenting on how well and happy she looks. She also made some loud noises and shouted 'no' and 'nanny' a few times which surprised them all.
So alltogether not a bad first week. Our main problem right now is an extreme lack of sleep. For some reason which we haven't quite determined yet, Niamh has been waking up at 3am for the last 4 days and won't go back to sleep after. She then has an hour sleep for her treatment and then no sleep till 8pm. Not sure how she does, we are struggling. One possible reason may be the change in her feeding times. Whatever it is hopefully she will go back to normal this weekend :)!!!!
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