Niamh Vs Brain Cancer: Cycle 2

Monday, 27 December 2010

Cycle 2 - Day 14 Home

Niamh is making fantastic progress with her standing and crawling. She can't get enough of it. It is great but scary at times as she seems to be getting quite adventurous with her newly refound skills.

A bit puzzled about her blood counts which we have just got this evening. We were expecting her to be neutropenic by now but everything is up, her neutrophils are 3.8 which is pretty good as they were only 1.8 last wednesday. They probably can still go down this week as she had the last dose of chemo on Thursday. The oncologist would like her to start the dreaded cycle 3 next Tuesday (4th).

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2 comments:

Sadia : )28 December 2010 at 12:58
Lovely to hear niamh is doing really good. May Allah give her more strength and courage for the days to come. Lots of love and hugs.

Sadia :)
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homestay.girl30 December 2010 at 11:59
I'm really pleased to hear that Niamh is doing so well. Great news!
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Niamh's Story

On 21st October 2010 Niamh was diagnosed with a Supratentorial Primitive Neuroectodermal Tumor (PNET), a type of brain cancer.

Niamh has had three surgical procedures to remove the tumor, four rounds of Chemotherapy (Headstart III) and another three surgical procedures to relieve a build up of cerebrospinal fluid in her head.

After the fourth round of chemotherapy Niamh's cancer has progressed. The next treatment option is craniospinal radiotherapy with a boost to the tumour location.

Six weeks after radiotherapy Niamh's tumour has progressed again. Though very difficult, we believe it is kindest to Niamh to end her treatment here.

Niamh and we are now in the excellent care of Acorns Children's Hospice where we will help make sure Niamh enjoys the best possible time with her sister Emilie.