Niamh has had another lovely day at home. She was keen to show off her standing and crawling to Nanny on the web-cam. It is still early days with her physical abilities but it is reassuring that she wants to try.
She has really enjoyed her week at home. Unfortunately back to the hospital tomorrow for 2 nights (minimum).
We are now half way through Cycle Two in terms of the drugs:
She has so far had Etoposide and Temozolomide from last Tuesday to Saturday, then Etoposide only until this evening.
In hospital she will have Cyclophosphamide tomorrow as well as Thursday. This needs to be given with lots of fluids (mesna) to protect her bladder so she will be on a drip for the next three days. She is also due some Vincristine tomorrow. Then Friday and Saturday more Etoposide hopefully from home and then a few days off before her last dose of Vincristine on Wednesday in a week. Then Cycle 2 will be done! Phew!
It would be nice to be home for Christmas, at least for the girls to open their presents but we are being quite realistic that it may not happen.
It is likely that Niamh will be neutropenic in the next couple of days (high risks of infections).
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