We only got admitted to the clinic at 2pm and yet it feels like a very long day.
The ward was full so we only got a bed at 7pm this evening. Niamh started the fluids at 2.30 then had the cyclophosphamide at 5.30 for an hour and then more fluids. If all goes well (ie. She wees the right amount) they will give her the cyclophosphamide at 3.30 tomorrow which would mean that we could go home on Friday late afternoon.
She is continuing the daily etoposide till tomorrow night so if we do go home on Friday it will be without any chemo. No chemo drugs on christmas eve nor christmas day!
Niamh was very well at home this morning, did the best crawling so far. When we arrived at the clinic this afternoon and she was given a bed, she wasn't very pleased. We had a few tears. She eventually settled back into hospital life.
She has been playing happily, made tea with her teaset for the neurosurgeons when they came to check up on her. They were kindly entertained.
This evening she is exhausted, yet only just falling asleep now (10pm). She seems in pain at times (a couple of loud scream), not sure what it is, suspecting it may hurt when she passes urine due to the chemo today. She is on so much fluids that she is constantly weeing so hmmm!
Hard to believe that we were meant to be on a ferry to France tomorrow night.
Sent using BlackBerry® from Orange
No comments:
Post a Comment