An evening at home as a family, amazing feeling, two beautiful daughters peacefully asleep, even more amazing!
It has been another long day. The kidney test didn't start till 12 and took four hours. They first put a small amount of a radioactive substance through her central line and then took blood every hour for three hours . We should find out how it went later in the week.
Then she had to endure another central line dressing change, followed by the second dose of the swine flu jab. Phew.
Then we waited and waited and waited and eventually got discharged with all her chemo drugs to be administered at home (scary).
She first had temozolomide, then etoposide (same as last night). It is a bit hard pushing these drugs down her tube knowing how toxic they are.
Niamh had a very good session with the physio today. Hoping to keep up the progress tomorrow with some 'mummy physio'.
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