Niamh Vs Brain Cancer: Cycle 2 - Day 4

Friday, 17 December 2010

Cycle 2 - Day 4 - Still home

Yesterday was a nice peaceful day. Niamh is loving being home. She doesn't have a huge amount of energy but she is very smily.

Giving the chemo drugs in the evenings is a bit stressful but hopefully with time it will get easier.

Today is going well so far, Niamh has been dancing to the music on the radio whilst playing playdough at the table. It is nice to see her sit at the table (the week before she was diagnosed, she had no balance and couldn't sit on a chair).

The slight problem right now is that Emilie is ill with a slight temperature, a cough and runny nose. Keeping them apart is not easy.
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1 comment:

Sadia : )18 December 2010 at 21:37
really happy to hear niamh is at home with her family. niamh is a brave and strong little girl. always thinking of you. want to say hiya to both girls niamh and emilie.

lots of love and hugs

sadia :)
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Niamh's Story

On 21st October 2010 Niamh was diagnosed with a Supratentorial Primitive Neuroectodermal Tumor (PNET), a type of brain cancer.

Niamh has had three surgical procedures to remove the tumor, four rounds of Chemotherapy (Headstart III) and another three surgical procedures to relieve a build up of cerebrospinal fluid in her head.

After the fourth round of chemotherapy Niamh's cancer has progressed. The next treatment option is craniospinal radiotherapy with a boost to the tumour location.

Six weeks after radiotherapy Niamh's tumour has progressed again. Though very difficult, we believe it is kindest to Niamh to end her treatment here.

Niamh and we are now in the excellent care of Acorns Children's Hospice where we will help make sure Niamh enjoys the best possible time with her sister Emilie.