Cycle 2 - Day 7

Another lovely day at home. Niamh has been very playful: lots of tickling, cheekiness and grabbing her sister for cuddles. The weakness on her right side seems to be getting better, she is using both right arm and leg very well. She has impressed us a few times today by bringing her legs right up and counting her toes (well just sound, no actual talking). This all suggests that Niamh is reabsorbing her CSF and there is not too much pressure in her head at this stage (we hope!). She does have quite a lot of fluid under her scar, but the neurosurgeons have not been concerned with this, so we don't worry either (hmm try not to).

At dinner time, she wanted to have a plate and a fork. We put a few pasta in her plate thinking she could play with them. Next thing we knew, she had put one in her mouth. We all panicked a little but luckily it went down with only a little coughing. She did not seem too shaken by it, instead she wanted more. We didn't want her to have more though as not the easiest food to practice on.

It is now 9.30pm, Niamh is happily sitting in our bed, playing with daddy's electric guitar and watching Charlie and Lola. She is looking very happy and not ready for sleep even though we are.

(After weeks of wanting to watch 'In the Night Garden' over and over, she now seems over it. Phew!!)