Niamh is home! It is a very nice surprise as we were expecting to be on ward 10 for a couple of weeks post op.
Niamh has impressed the neurosurgeons once again with her ability to bounce back from yet again another major surgery. Mr Kay, Niamh's consultant neurosurgeon came to see us this morning. He was happy for her to go home as long as her stitches looked clean and good. The nurse took all the dressing off, it was quite a job. Niamh cried but she was very brave throughout. Mr Kay was very pleased with the stitches, they look very clean and seem to be healing well. Niamh will have to go back twice next week, there are a lot of stitches and they are taking half of them off on the one day and the other half a couple of days later. The scar on her head is a lot longer than it was but it does look neat.
Mr Kay also sat with us this morning and showed us Niamh's MRI scans. The most recent one (Monday) looks very good, most of the tumour has been removed and now only microcoscopic cells are left. Unfortunately it does not change the fact that Niamh's tumour is very very aggressive and if left untreated would grow back big in a matter of weeks.
Niamh has had a nice day (despite the head dressing removal). She had a physio session this morning down in the gym. She did quite a lot of walking for a little girl who has had a 9 hour brain surgery five days ago and has been in bed since. She also did great with her crawling.
In the afternoon the speech and language therapist Jo came to see her. As Niamh is not dribbling anymore and seems to be swallowing her saliva well, we thought we would try her on chocolate buttons. She was not keen. She did well with her communication though. Jo felt that Niamh had improved a lot communicationwise compared to the last time she saw her a couple of weeks ago.
Niamh is doing better with her feed. Although we didn't get to weigh her before we left, we believe she may have lost a kilo over the last 10 days due to all the 'starving' she had to do for MRIs and surgery. Hopefully it won't take too long to get it back.
Alex and I will be meeting with the radiotherapist and the oncologist again tomorrow.
Hi to all
ReplyDeleteAgain Niamh has bounced back. She is a little fighter. Always have you all in my prayers. May Allah be with you all throughout this journey.
Hugs and cuddles to Niamh & Emilie
Bravo Niamh! J'espère que le soleil vous accompagnera et que vous passerez de bons moments réunis à la maison. On pense beaucoup à vous et on vous embrasse.
ReplyDeletePatricia
We are all pleased (and impressed!) she is recovering so well after such a big operation.
ReplyDeleteWe are all thinking of you, at this time more than ever. Whatever difficult decisions lie ahead, we know that you will make the right decision for Niamh.
Paul
We can't imagine what the last few months have been like for you all, Niamh is a real trooper and most definitely deserves to be spoilt rotten with chocolate buttons! Thinking of you and sending all our love, Gary, Emily, Benjamin and Isla xxx
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