
What a great weekend. The sun was out all weekend. It was lovely to have Niamh and Emilie at home. We didn't go too far, just a visit to Granny and Popa and the rest of the time around home and our garden. Niamh loves to go on the trampoline and also her bike. She has walked lots which shows how much the pressure in here brain was affecting here at the beginning of the week when she couldn't walk. She's been doing a lot of talking though it's hard to make out words, just sounds really.
On Saturday night we had a little 'being at home' party with indian takeaway, Emilie loves indian food. Niamh enjoyed playing with the nann bread and popadoms but couldn't pluck up the courage to try any.
Back in hospital tonight ready for MRI scan under general anaesthetic tomorrow at 9.00. We're nervous about it, especially after last weeks CT scan and the uncertainty whether Niamh's disease has progressed. We may have to wait for results but hope to hear at least something tomorrow.
I came upon your blog accidentally as I was looking for summer French courses on the internet for my family. I was very touched to read about your little girl. I am a Paediatric Physiotherapist working in London so understand a little of what you will be going through. I wish your little girl a speedy and full recovery.
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