Niamh is continuing to make good progress and impressing everyone. We are so proud of her. She was out of bed this morning playing play dough and making tea for the surgeons on their rounds. Niamh woke up well from the general anaesthetic she had for the MRI at lunchtime. She in fact does not sleep much considering all. She spent the afternoon/evening watching DVDs, playing with Emilie's Baby Annabel, making food for mummy and daddy and enjoying once again all the nurses'attention, especially Suzie. Suzie got a lot more smiles than we did.
The neurosurgeons are very pleased with the MRI. They are waiting for the formal report to commit but it sounds like most of the tumour has been removed. Once again we are so grateful to Mr Kay, Niamh's consultant neurosurgeon. The drain was removed this evening. I stressed about it for an hour and she didn't even cry.
Her temperature is settling, her CRP which was high yesterday 125 was down to 65 today which is good news.
Her heart rate is still low when she is asleep but the doctors don't seem concerned.
On the not great front, we had a tough meeting this morning with the radiotherapist and the oncologist. We are left unfortunately with some very difficult decisions to make.
Je t aime tres fort Niamh,je te fais de gros bisous. Helene et Alex,je suis sure que quelque soit votre décision, ce sera la meilleure pour Niamh,et nous serons tous de tout coeur avec vous et nous vous soutiendrons.bisous Nany
ReplyDeleteJe vais dans le même sens que Nanny, nous savons que vous prendrez la meilleure décision pour Niamh qui est une petite fille très courageuse et qui a des parents aussi courageux. Emilie a été adorable. Nous vous embrassons.
ReplyDeletePatricia