The next few days Niamh was okayish. Her shakiness became more a balance issue. She was no longer able to sit up. By the end of the week, she was getting tired more and more quickly and needed to lie down regularly.
We heard from Dr Sunderland the day after our appointment. He told us that we would get a letter for the MRI Scan for the 3rd November (ie. in three weeks) but that he would try his best to get us an earlier date. He was hoping to get one for Friday 22nd October.
He said to take Niamh to A&E immediately if her symptoms became worse.
On Friday 15th October, we received a letter for an MRI Scan on Wednesday 20th October. Even though it was earlier than first thought, it still felt like a long wait. It was obvious by then that Niamh's condition was getting worse very quickly.
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